Prof. Jorie Butler



Department of Biomedical Informatics

Division of Geriatrics

University of Utah



Enhancing Geriatric Pain Care with Contextual Patient Generated Data Profiles [IIR, DHI]


Our research group is currently conducting several studies around the use of patient generated data (PGD) to enhance delivery of Patient Centered Care (PCC) to improve management of chronic pain in older adults.  

The research addresses the use of patient generated data (PGD)—an innovative approach to deliver PCC to older Veterans that is characterized by attention to patient priorities, values, and goals.Models of patient centered care have been implemented in a variety of primary care settings including geriatrics. However, prior research lacks the rigorous developmental and scientific methods needed to optimize the incorporation of patient generated data into practice. As a result the translation of principles of shared decision making and the assimilation of patient priorities into everyday practice remains challenging. Our hypothesis is that effective use of PGD at the point of care will broaden clinicians’ perspectives and expand their understanding of the patient’s situation. In turn, we postulate that the insights gained from PGD will significantly improve the practice of shared decision making and the management of conditions that are particularly dependent on a holistic approach to patient care. 

 Our research engages with geriatric Veterans with chronic pain and their caregivers to explore Veterans' perspectives on the content of the PGD profile displays and their attitudes toward them. We are also working with clinicians regarding desired content of the PGD profile displays specific to pain management. One goal of this study is to develop a prototype clinician-facing PGD profile display and evaluate its usability. Another goal is to examine the impact of contextual PGD profile displays on patient adherence, pain function, satisfaction, and shared decision making. 
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